have you ever met someone with an autoimmune disease? some people are very open about what they have, while others keep it quiet. i’m somewhere in between. i don’t spill the beans about it immediately when i meet someone, but i also don’t shy away from explaining it. i even enjoy talking to others about it – not because i feel that i am special (trust me, i wouldn’t wish this on anyone), but i enjoy the chance to educate people. in particular, i tend to shy away from talking about my illness when i am running with my groupies, mostly because i don’t want to sound like a sob-story. plus, people tend to be aghast that i’m even running! i just want to look and be as normal as possible (though my body constantly tells me otherwise)!
anyways, i thought i’d list out some myths or things people have told me when they discover i have an autoimmune!
- are you contagious?! of course not! if i were contagious, i would quarantine myself to avoid giving it to others! being contagious also means i’d have something like a virus, which means it wouldn’t be a chronic problem. so when i tell you i have chronic fatigue or potentially have Lupus, don’t take two steps back!
- you look perfectly normal! this can either be a complement or a negative to me. i suppose it might be different for each individual. for me, however, i like hearing i look like normal, especially since i feel anything but normal 99 percent of the time. however, if i’m having a flare up or a bad day, it’s the last thing i want to hear. sometimes i suffer so bad and it’s aggravating that i’m the only one who knows. internal illnesses are really blind handicaps and often, i feel bad for being sick. sometimes i feel people second-guess what i say or how i feel simply because they can’t SEE my disability.
- how did you get something so horrible?! this is something i’d like to know. actually, i’d like to know WHAT i have, and then WHERE i got it from. if you’re a scientist or a doctor and you discover what i have, i will probably love you forever.
- will you die? um, yes. but last i checked, so will you. perhaps i might die first, but who knows.
- why the heck do you run if you have a disease?
this is probably the second-most popular question i get, mostly because i
run like it’s nobody’s business. back when i realized i had a long-term
problem, my rheumotologist told me to take up some form of exercise
(preferably swimming, yoga, pilates) to keep my joints from getting
stiff. he also suggested it might help my fatigue. so what sport did i
choose? running, of course! at the time, i was having trouble walking....
GO BIG OR GO HOME!
my rheumotologist probably thinks i’m crazy, but so what. he doesn’t have to live in my body and i will run until it’s physically impossible to do so. i can’t even count the ways running helps my illness – it gives me more energy, my joints are much less stiff, it helps my digestion issues among other things.
2015! very serious about running and proving all my doctors wrong! also, my running friend Pam is the bomb! |
i only included this photo because my leg muscles look pretty sick ;) |